We need continued prayers. Isabella is just not getting any better, even sedated and intubated. They thought the forced rest might help her improve. They cannot keep her on heavy sedation because her body will not properly respond with its own antibodies. However when the sedation wears off, because she has tubes in her throat & nose and a needle in her head, she cannot squirm around, so they have to tie down her arms. But she hates that (who wouldn’t) and it makes her so mad she throws fit, creating a real danger of a heart attack due to the sustained heart speeds given her lung condition. How does one explain to a 7-month- old what is best for her?
Mom can’t go in the room right now because Bella so wants to jump into Mommy’s arms that she has a similarly dangerous reaction. Meanwhile, her lungs are still filling up and they need to aspirate frequently, which also causes the air tube to jiggle loose and can cause big problems if not quickly corrected.
She is supposed to be showing improvement. She cannot keep going downhill. The bottom line is that she remains at real risk and we really ask you to keep praying.
